Mental health and reflexivity: The role of personal experiences of mental ill-health in medical sociological research

Blog co-authored with Tineke Broer, University of Edinburgh


Reflexivity is framed as an important aspect of rigorous sociological research. Critically reflecting on the position, role and influence of the researcher, and how this shapes the knowledge they create, provides a way of navigating epistemological threats to research practice. Sociological (and anthropological) research on mental ill-health has – for some researchers – entailed drawing productively on personal experiences. This is seen in Jackie Orr’s (2006) study of panic, subtitled ‘a genealogy of panic disorder’. She draws explicitly on her own experiences of panic and of participating in a clinical trial, critically considering her experiences in the light of a normalizing and in some ways disciplining psychiatry. Similarly, anthropologist Emily Martin (2009) uses her experiences of manic depression as a source of data, and a way in, to a wider ethnography of depression in the US.

More directly, ‘mad studies’ and user-led mental health research contributes to debates about the impact of experience on research and knowledge production. Standpoint epistemology in mental health research and mad studies has offered further ways of thinking through and with subjective experiences understood by one’s self or others as pathological (Rose 2003; LeFrançois, Menzies, and Reaume (Eds) 2013). This re-positions and reconfigures experience within a research context; and this movement can in part be seen as a reaction against power imbalances in psychiatry. There are, then, significant political implications to methodological and theoretical reflections on reflexivity.

These political aspects are evident in Alain Ehrenberg’s (2009) work, which argues that ‘admitting’ one’s mental ill-health in a public place relies on and constructs a particular notion of the self: one that confesses its disturbances in order to promote a social cause. Thus, conceptualisations of knowledge (production) and those of selfhood are intricately linked, and are reflected in the way in which researchers use (or do not use) experiences of mental ill-health in their research.

In a forthcoming symposium, funded by the Foundation for the Sociology of Health and Illness, we aim to provide space to critically interrogate the role of personal experience of mental ill-health in medical sociological research. What are the implications of researchers’ experiences with mental health when they set out to investigate sociological aspects of mental ill-health? What are the risks and benefits of researching experiences which may be close to our own? Are there dangers in researching experiences which we cannot share? What does it mean to draw on our own experiences when writing up the research, or when the research draws almost exclusively on our own experiences such as in auto-ethnography? Reflecting on these issues raises important wider debates regarding the nature of knowledge and the world.

The symposium will be held on 7th of June 2016, and aims to explore in depth what it means to draw upon one’s own experiences of mental ill-health in sociological knowledge production. The two confirmed speakers are Professor Diana Rose and Professor Dave Pilgrim. Diana Rose is Professor of User-Led Research, King’s College London, conducting research in her identity as (former) service user. Dave Pilgrim is Professor in the School of Social Work, University of Central Lancashire, and is co-author (with Anne Rogers) of the book A Sociology of Mental Health and Illness.

There are several spaces for papers from other researchers working on mental health, who would like to contribute reflections, analysis or findings relevant to the topic of reflexivity in mental health research. We are especially interested in hearing from sociologists, but welcome those working in other relevant disciplines (psychology, social work, anthropology, STS).

Details about abstract submission can be found here. Deadline for abstract submission is 6th March 2016.

Registration for the event is open, follow this link.

Organising committee: Tineke Broer (University of Edinburgh), Amy Chandler (University of Lincoln) and Martyn Pickersgill (University of Edinburgh). This symposium is generously supported by funding from the Foundation for the Sociology of Health and Illness.


Ehrenberg, A. (2009). Weariness of the Self: Diagnosing the History of Depression in the Contemporary Age. McGill-Queen’s Press.

LeFrancois B.A., Menzies R. & Reaume H., eds (2013) Mad Matters: A Critical Reader in Canadian Mad Studies. Canadian Scholars’ Press Inc., Toronto.

Martin, E. (2009) Bipolar Expeditions: Mania and Depression in American Culture. Princeton University Press

Orr, J. (2006). Panic diaries: a genealogy of panic disorder. Duke University Press.

Pilgrim, D. and A. Rogers (2010). A Sociology of Mental Health and Illness. Open University Press.

Rose, D. (2003). ‘Having a diagnosis is a qualification for the job’. BMJ. 2003 Jun 14; 326(7402): 1331.